How Even Small Changes Can Ease a Patient's Journey

MEGAN WHITTINGTON | May 16, 2016
Talk about this article with nurses and others in the oncology community in the General Discussions Oncology Nursing News discussion group.
Megan Whittington

Megan Whittington

Change is the one word that describes an immediate result of a cancer diagnosis. A patient’s world can be turned upside down, and they could end up facing obstacles including dietary changes, role changes within their family, and even changes in their activities of daily living. They have to think about and plan for the effect of the diagnosis on every aspect of their lives. Certain tasks that once were routine can become obstacles, creating even more stress.

As a lay navigator, I have found that one of the greatest joys I have been able to experience has been when I find and offer a patient a resource which not only works for them, but gives them an emotional boost that can make all of the difference when facing what is often an overwhelming disease. The turnaround in a patient’s attitude and emotional state not only brightens their day, but also reminds me of why I am so passionate about helping patients overcome barriers. It’s inspiring to see how offering resource assistance can make a huge impact on the patients—not only emotionally, but often physically as well. Sometimes resolving the barrier can be a game changer when I am able to assist them with access to care or ease of receiving their treatment.

One patient that comes to mind is Patricia. Patricia was at an all-time low when she was first referred to me. She had recently been diagnosed with colon cancer, and it not only was affecting her emotional state, as she had to relay the news to her daughter and church family, but also was affecting her day-to-day life. Transportation, finances, getting groceries, housework, and fear of “overwhelming” her friends and family were only some of the struggles she expressed to me when I began working with her. As I was going through resource options to help Patricia, I heard her anxiety, and I was determined to help in identifying resources which might assist in decreasing some of the distress that she was experiencing.

I knew that the task would be challenging. Some of the hurdles we face in helping patients can include extensive resource investigations and evaluation, hoping a particular grant continues to have available funding, and even dealing with insurance companies. Patricia’s barriers were not resolved overnight, but with assistance from her medical oncologist office social worker, I helped Patricia apply for resources to assist in resolving some of the financial and transportation barriers she was now facing. Patricia was very grateful for this assistance, but I knew that housework and her lack of energy were still a huge burden for her as she had begun treatment for her colon cancer.

Patient’s “Game-Changer”: Housework

The “game changer” for this patient was her barrier with housework. Patricia explained how important having a clean house was for her. She explained to me that when her house was dirty, she simply could not relax. She related that she was out of energy after her chemotherapy and simply could not do her day-to-day tasks which increased her anxiety and stress. She also stated that she did not want her friends from church to come by anymore, as she was too embarrassed to open her home to anyone, and that this was taking a toll on her lifestyle. 

I contacted a housecleaning resource who arranged for free services for Patricia. After the first time her house was cleaned by the service, her attitude changed drastically. She seemed happier, uplifted, and told me, “I hit the jackpot!” after having her home cleaned the first time. She described it to me as a blessing out of the blue, and stated that it was the energy boost that she needed. She related that the cleaning company not only made her house “spotless” but also gave her a gift of an aromatherapy candle. She said that she will never light it, as it is her keepsake to remind her of the gift and the effect it had on her.

Feeling Like Herself Again

Another example involved a patient named Mary who was diagnosed with breast cancer and anxiously going through physical changes as she began her chemotherapy treatments. When I first spoke with her, she explained that she didn’t even recognize who was staring back at her in the mirror due to the amount of hair she was losing, and that it was hard for her to leave the house without the whole world knowing that she was sick with cancer.

Talk about this article with nurses and others in the oncology community in the General Discussions Oncology Nursing News discussion group.
External Resources

MJH Associates
American Journal of Managed Care
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MD Magazine
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Specialty Pharmacy Times
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