Resources for People Living with Kidney Cancer

Monday, April 04, 2011
There are a number of organizations that offer information, resources, and support services for people living with kidney cancer. In addition to the general cancer organizations, there are a few organizations that focus specifically on kidney cancer. Following is a list of organizations that may be of assistance to people living with kidney cancer (information is current as of March 14, 2011):

Action to Cure Kidney Cancer
1-212-799-4354, website:
Increases awareness of kidney cancer and raises money to support research on more effective treatment of kidney cancer. The organization was initially established by people with kidney cancer in 2003.

American Cancer Society
1-800-227-2345, website:
Supports cancer research, education and advocacy. Provides supportive services for people with any type of cancer, such as transportation and medication assistance.  

1-800-813-HOPE (4673), website:
Provides professional support services at no cost to people affected by any kind of cancer, including kidney cancer. Services are provided by trained oncology social workers and include counseling, education, financial assistance and practical help.

Cancer Support Community
1-888-793-9355, website:
The Wellness Community and Gilda's Club joined forces in 2009 to become the Cancer Support Community (CSC). CSC provides support groups, counseling, education and healthy lifestyle programs for people with any type of cancer.

Kidney Cancer Association (KCA)
1-800-516-8051, website:
Funds, promotes and collaborates on kidney cancer research projects, educates healthcare providers and patients about kidney cancer, and advocates at the federal and state level on behalf of patient interests.

National Cancer Institute (NCI)
1-800-4-CANCER (1-800-422-6237), website: or (Spanish)
Utilizes information specialists to answer questions about any type of cancer and provides educational and resource materials. The NCI website provides comprehensive information on cancer prevention, diagnosis, treatment, statistics, research, clinical trials and news. Live help can be obtained via NCI’s instant messaging service, at, and questions also may be emailed to

National Coalition for Cancer Survivorship
1-877-622-7937, website:
Advocates for quality cancer care for all Americans and the empowerment of cancer survivors through federal policy initiatives.

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Lisa Schulmeister, MN, RN, ACNS-BC, FAAN
Blog Info
Lisa Schulmeister, MN, RN, ACNS-BC, FAAN is an oncology nursing consultant and editor-in-chief of Oncology Nursing News.
Author Bio
Lisa Schulmeister, MN, RN, ACNS-BC, FAAN, is the Editor-in-Chief for OncLive Nursing. She is an oncology nursing consultant and adjunct assistant professor of nursing at Louisiana State Health Sciences Center in New Orleans, LA. She provides continuing nursing education to nurses across the Unites States, is active in several professional nursing organizations, and is intrigued by the many ways nurses use technology to communicate.
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