CancerCare, a national nonprofit organization that provides psychosocial support, education, and financial assistance to anyone affected by cancer. has release a landmark report illustrating the many physical, emotional, financial, practical, and informational needs patients with cancer experience during and after clinical treatment.
The 2016 Patient Access and Engagement Report reflects the perspectives of more than 3000 patients diverse in ethnicity, income, education, geography, age, insurance, cancer type, and treatment stage regarding their understanding of their diagnosis and access to care, participation in treatment planning, communication and engagement with providers, insurance and financial issues, the impact of cancer on quality of life, and issues related to survivorship.
Key findings include:
“Cancer takes its toll in many ways, some of which last for years and cause debilitating distress for patients and families,” explains Patricia J. Goldsmith, CancerCare Chief Executive Officer. “This report, reflecting the input of thousands of patients, sheds light on the important issues affecting patients’ lives during and beyond a cancer diagnosis. CancerCare conducted this study to learn more about how patients experience life after a cancer diagnosis, in order to inform our program development and most accurately represent and address the needs of patients throughout their continuum of care and after clinical treatment is complete.”
The report and chart deck, downloadable and available free of charge, provide details and data from six separate online surveys, each completed from July to November of 2015.