Proactive Genes

Families with genetic mutations that heighten their risk for disease face many complex and personal decisions including how and when to share such information with their children. In fact, many parents express that they choose to undergo genetic testing to learn whether they have a mutation that could be passed on to their children. Further, these parents may elect to have preventive surgeries and often look for guidance on how to explain this decision to their children as the decision to undergo these procedures impacts the entire family.

We understand that talking to your children about your family's health history can feel overwhelming at times. It is with that understanding that we set out to develop resources that can help you share health information with young children in a way that matches their maturity level with concepts that they can grasp. These communication tools should approach the topic of hereditary risk in a manner that will not crea

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