Susan Mazanec on the Value of a Patient-Centric Registry

Susan R. Mazanec, PhD, RN, AOCN®, Research Assistant Professor, Frances Payne Bolton School of Nursing, Case Western Reserve University, discusses the value of a patient-centric cancer registry that incorporates patient-reported outcomes.

Mazanec defines patient-reported outcomes as subjective reports about a patient’s quality of life, satisfaction with care, and adverse events from treatment. Adding this data to a larger database that contains epidemiologic information provides a more complete picture from the patient’s perspective, Mazanec explains. Additionally, this information provides a more comprehensive gauge of treatment success.