Patient Voices: Shaping the Future of PNH Care

Opinion
Video

Panelists discuss how their lived experiences and insights as patients should inform research priorities, treatment development, and care delivery improvements while sharing hopes for a future cure that would eliminate ongoing disease management needs and allow greater life flexibility.

Video content above is prompted by the following:

  • What role do you think patient voices should play in guiding future advancements in paroxysmal nocturnal hemoglobinuria (PNH) care?
  • How do you imagine your life might change if there were a cure for PNH in the future?

This program was made possible with support from Novartis Pharmaceuticals.

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